Thursday, May 3, 2012

update

I went to the Dr. yesterday for another ultrasound.  Everything is looking pretty good. Only the baby's stomach is up in the chest cavity right now. Both kidneys are looking good now. The baby was underweight 3 wks ago but now the baby weighs 4 lbs already. I started taking the steroid shots today in attempts to mature the babys lungs as much as possible. I will have to get one more tomarrow. I already take a daily injection so whats one more. The Dr. wants to do a fetal lung test between 36-37 wks. That is done by testing amniotic fluid. Once again I can't get away from the needles. Once the Dr. sees how mature the lungs are then he will decide on when he want me to go in for the c-section. He said he will probley deliver me between 37-38 wks. He is hopeful that the hole in the diaphragm is small because only the stomach and part of the bowel has been able to pass through. I hope that is the case but anyone who knows alot about CDH knows that there are no guarantees.  A baby can have a mild case and not survive or a baby can a servere case and live. The past week or so has been a hard week for me dealing with all this.  I'm part of a support group for CDH and I follow alot of CDH stories. This past week alone I have seen 3 babies lost to this aweful birth defect!! As I get closer and closer to delivering I am realizing that our baby will be leaving the hospital to go to one of two places and I'm hoping that it is home. If I told you that funeral arrangements didn't cross my mind I would be lying but unfourtantly thats just the way it is and I'm trying to accept that. It's not fair but I know that things don't always go the way that we want them too. Thank you for following our story and listening to me vent a little bit.

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